Frustrated

I wanted to give you a brief update on what is happening.

We learned today that more than likely we'll be going to Bethesda, Maryland rather than Houston. It has been most frustrating since Houston would have been closer, but we're willing to do whatever it takes. We are sure hoping to have something firm in a few days.

I'll let you know.
Kim

May 22

The already low blood counts continue to decline. It's not so low that he needs a transfusion, but it is getting dangerously low. We were so disappointed.

Just before 5:00 this evening, we found out he will probably be going to Houston for the bone marrow transplant. This will not be confirmed until Wednesday. Our Dr. calls it "Administrative BS." The paperwork has been unbelievable, but we're willing to do whatever it takes. Sooo, hopefully his preliminary appointment in Houston will be during the first week of June.

Jenna moved home yesterday for the summer. She made it in around 11:00 last night. It will be great having her home.

We are celebrating our 33rd anniversary today. It's so hard to believe; 33 years already? We are so blessed!

Love you all,
Kim

Going Camping

Ray continues to feel good; so good that he is going camping this weekend. (Something he's been putting off for quite some time) Also camping is Ryan, Andy, Daniel, Mary, Reece, Luke, Grace, John Paul and Kyler. They'll have so much fun together. I hope the weather is good for them.

There was no Dr. appointment this week. The next one is Friday, the 22nd.

God bless you,
Kim

Destination Unknown

The blood counts today were almost exactly the same as they were last week. They're still low, but haven't dropped in two weeks. This gives us a little more time to plan for the bone marrow transplant.

Things are still up in the air as to where the transplant will be done. This has been somewhat frustrating, but yet we're grateful to be able to be home a couple more weeks. I'm really hoping we can be home until school is out. Jenna will be moving back home for the summer later this month. I told her it will be a great help to have a "Mama" home with Daniel and Mary.

Ray's energy level has been amazingly good. He still goes to the shop everyday and is able to take care of things there. He's having a really hard time trying to decide what to do with all that. First, he was going to auction everything but now he's having second thoughts. I just want him to be at peace with his decision.

Just today I received a really good one liner in an email from a dear friend of ours. (Thanks Louis!) "Life isn't about how to survive the storm, but how to dance in the rain."

Love you all,
Kim